Typically, when people think of February, they think of Valentine's Day. When they think of Valentine's Day, they think of hearts. So I guess it's no coincidence that February is National Marfan Awareness Month.
Marfan syndrome is a connective tissue disorder that affects the body in many different ways. The three main areas of the body that can be affected by Marfan syndrome are the heart, eyes and skeletal system. It is a genetic disorder than has a 50% chance of being passed down from the parent to the child.
Todd was diagnosed with Marfan syndrome as a child. Both Katie and Michael also have it. This is the reason that we have to go to so many doctor's appointments. Knowing that you have Marfan's and being monitored by physicians is the best way to stay on top of the disorder.
Since I don't have Marfan's, this entire process has been a learning experience for me. And I continue to learn more about it each day as Todd, Michael and Katie face new challenges. I have never blogged about Marfan's before because I wasn't really sure that it was my story to tell. As Todd pointed out, our children have Marfan's, which makes it my story as well. So I hope to be able to blog about doctor's appointments, developments in research and things that occur in Todd, Michael and Katie's lives that pertain to Marfan's syndrome. It will also give me a record to look back on as to when certain aspects of the disorder manifested themselves.
Throughout the month of February, I will blog about when Michael and Katie were diagnosed with Marfan's, as well as what they have already went through relating to Marfan syndrome. Marfan syndrome does not define who they are but it is definitely a part of their everyday lives.